|

Please
join us & take part in the Genentech "Heroes of Hope" program!
Click here to
learn more!
Introducing
CF Living, A New Resource for CF Patients and Caregivers
Click here
to learn more!
Cystic
Fibrosis Clinical Trial Information:
DO YOU HAVE CYSTIC
FIBROSIS AND ARE TAKING PANCREATIC ENZYMES?
(Please note...they pay differently)
Clinical
Trial #1 - CLICK
HERE to
learn more about this clinical trial & date
Clinical
Trial #2 - CLICK
HERE to
learn more about this clinical trial & date
|
ED
DAYS AND CONFERENCES FOR 2008
|
| We can look
forward to many great education events in the coming Year. A few
are listed below. We will add others as they are scheduled and confirmed.
|
|
"The
Power of Two", a book due to release this Fall!
A Twin Triumph over Cystic Fibrosis! Click
here for more details! |
| |
|
|
A New Book Publication! |
Parenting
Children with Health Issues: Essential Tools, Tips and Tactics
for Raising Kids with Chronic Illness, Medical Conditions and
Special Healthcare Needs by Foster Cline, MD and Lisa Greene
Publication Info: June 30, 2007 for $24.95
Currently available through Love and Logic at www.loveandlogic.com
for $24.95 Available to order now at discounted pricing to ship
on June 30th at www.amazon.com
and www.barnesandnoble.com
ISBN 10: 1-930429-89-4 and ISBN 13: 978-1-930429-89-5
Book Description:
This book provides help for parents who are raising special
needs children with health- related issues. Parents, caregivers
and professionals will learn essential techniques to help children
comply with medical/dietary requirements, take responsibility
for healthcare and develop good coping skills. Get practical
and compassionate answers to tough questions as well as effective
ways to communicate about medical issues with children of all
ages.
Learn how
to:
- Encourage children to love life despite health challenges.
- Handle refusal to take medication and do medical treatments.
- Understand and respond to ill children’s special emotional
needs.
- Avoid power struggles and other common parenting traps.
- Facilitate children’s concern for their illness without frightening
them.
- Promote healthcare responsibility without nagging or lecturing.
- Enable children to make good self-care decisions about their
bodies.
- Communicate with children about their medical issues in ways
they’ll understand.
- Separate “I can’t” from “I won’t” and respond accordingly.
- Navigate sibling, family and couple relationship issues.
- Identify normal emotional responses to a child’s diagnosis.
- Cope with the demands placed upon caregivers in practical
ways.
|
| |
|
April
19,2008
8:30 AM |
Nemours
Children's Clinic CF Center-Jacksonville
Annual "CF Family Focus" Day, 10th FL.
807 Children's Way, Jacksonville FL.
Contact: Kathryn KimyonMunch. RN. MSNCPNP
1(904) 390-3784 |
|
|
May
17,2008
1 PM |
Nebraska.Medical
Center Education Day
Omaha Nebraska Regional CF Center
Ccontact: Jill Fleiege, MS, APRN
(402) 559-4876 |
|
|
| June
7,2008 |
UnivFL..Shands
Hosp.Gainesville FL. Adult Clinic Program
CF ED DAY
Contact Wanda Nichols, RN., Clinic Coordinator.
(352)-392-2666 |
| |
|
| Aug.
1-3, 2008 |
CFRI
21st Annual Education Conference, "Living A Miracle"
Sofitel San Francisco Bay Redwood City, CA
Contact: David Sohoo 1-650-404-9977 |
|
|
| Aug.
3-8, 2008 |
CFRI
Teen & Adult Day Retreat "Club Med" at the Vallombrosa Conference
Center
Menlo Park, CA
Contact: David Sohoo 1-650-404-9977 |
|
|
| Oct.
23-26, 2008 |
CFF
NACFC 2008
Orlando, Florida
Call 1-800-FIGHT CF for more information |
|
|
| Nov.
8, 2008 |
CF
Families & Clinicians --Put on your calendars.
Central Florida Support Group Education Day
So. Conway United Methodist Church-- FLC.
3401 So. Conway Rd. Orlando, Florida
Contact: Beverley Donelson (GrandmomBEV)
1-898-4427 or 1-888-307-4427 |
We
will add others as we get them. We hope to see you there!
Cystic
Fibrosis Clinical Trial Information:
DO YOU HAVE CYSTIC
FIBROSIS AND ARE TAKING PANCREATIC ENZYMES?
(Please note...they pay differently)
Clinical
Trial #1 - CLICK
HERE to learn
more about this clinical trial & date
Clinical
Trial #2 - CLICK
HERE to learn
more about this clinical trial & date
|